Rare diseases

I am happy to say that my story was shared on the Rare Diseases website and that Radiation Induced Lumbar Plexopathy is now listed amongst their rare diseases. This is a step in the right direction to have acknowlegment and understanding of RILP .. we need to understand the symptoms so that diagnosis cam be … More Rare diseases

Rolling through history ..

Yesterday at the invitation of my friend Cathy, who works as a ranger, Annie and I went to the Kamay Botany Bay National Park in Kurnell. https://www.nationalparks.nsw.gov.au/things-to-do/visitor-centres/kurnell-visitor-centre At the visitors centre we looked at the various displays as Cathy explained to us the history of the area. Did you know that Captain Cook’s ship was … More Rolling through history ..

Learning to adapt

My daughter is very good at finding things that make my life a little easier. One of the difficult things is to carry hot drinks and wheel my wheelchair, its a very easy way to get burnt. This little thermos with a tea strainer inside is a great way to overcome this hurdle. I can … More Learning to adapt

Rolling Adventures

  Most weeks my friend Annie comes over and we go on a Rolling Adventure. These are to places that are wheelchair friendly, for long rolling walks, around Sydney. When I broke my leg these stopped for a while but now our adventures are back on. They are a great form of exercise plus the … More Rolling Adventures