Dr Sylvie Delanian is a Radiation Oncologist working at the St Louis Hospital in Paris. For the past fourteen years, she has been looking at ways to treat the damaged caused by radiation therapy post cancer treatment. The level and type of damage depends on the area effected. In this blog I look at Radiation Induced Lumbar Plexopathy caused by radiation to the pelvis due to various types of cancers. In layman’s terms the radiation causes healthy tissue to become fibrotic, blood vessels are damaged, this in turn causes the nerves to die as they lack a blood supply. Dr Delanian in her work is looking at improving the blood supply to the nerves, reducing inflammation and healing fibrotic areas.
In her articles her work has helped some patients, but it is difficult to say how each person would respond, as the amount of damage is different for everyone, it is also more or less advanced. All of the drugs have been used for more than 20 years but not for RILP, they have in the past been well tolerated but not used together.
The question is why do we not know about this therapy?? Why did it take another patient with RILP to tell me about it?? Why did she only find it while trawling the internet for help?? Why do other Radiation Oncologists and neurologists not know about her work??
In our Facebook Page Files there are articles on Dr Delanian, plus the full medication regime that she uses and information for patients. I will be starting on these medications but it is in her words “probably to late for me as the damage is very advanced”. However she feels it could help the nerve pain, lymphedema and any bowel or bladder issues… Maybe!!! .. I am to use the medications for six months and let her know how I am going.. Another lady in our group has already started to using the regime, she is still able to walk but has weakness and foot drop, we will see how she goes too, so far she has tolerating it well. If you are thinking of using these medications I suggest you contact Dr Delenian and your own Doctor… For those of you living in Europe she is in Paris and she also has “English Days”. Well worth a visit… Will keep you posted on my progress and others. The best results have been seen after using for 1-2 years..
Link to Facebook Group
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