I am sorry to say it has been a very long time since I wrote a post, 2016 has been a very up and down year with our family, from great events to very sad times. In all this I lost the urge to write even though I had created posts in my head I could not get them down on paper.
My main goals for this year had been to manage my new wheelchair better and to gain more independence. To this end I entered Royal Rehab here in Sydney to learn better wheelchair skills and to work on my upper body strength. I spent 5 weeks doing intensive physiotherapy, working hard to achieve my goals. Although I am paralysed I am not classed as a spinal injury, my injury is classed as degenarative, therefore I cannot access the spinal injury ward or gym. I found this very frustrating as I was in a ward with hip and knee replacements, spinal surgeries and strokes. All of whom I watch regain their ability to walk, while I remained in the chair, I did feel a bit disconnected from the other patients. It would have been so much better in the spinal injury ward as then I would have been working with others who were similar to me.. health red tape does get very frustrating at times..I did however manage to get much stronger while I was there plus learnt to do “wheelies” and to master kerbs and gutters a little better.. I also did a great deal of stretching as the muscles get very tight from sitting all day. The stretches are an important part of my exercises now I am home.. I did not manage to get from the floor into my whelchair yet but my transfers are much better and upper body strength has improved..
My rehab doctor while in hospital was great as she was a specialist in spinal injuries, what ever the cause. She ensured I had a full physical check up and I was able to ask about any problems I was having .. I also had the chance to connect with a social worker, occupational therapist and dietician. One if my favourite things to do while I was in hospital was using a hand cycle with the recreational staff. This gave a real feeling of freedom as you sit in it with legs out straight and cycle with your hands. The grounds of the hospital are all set out for doing such things with lots of space.
While there I tried out a Power bike that fits on the front of my wheelchair. This allows me to give my arms a rest sometimes. Plus it gets over more difficult terrain..my Power bike arrived a few weeks ago and it is great. This is me learning to use it!! It does go up to 23kmph but legally I am only supposed to go 10kmph!!!
I am still adjusting to this new life in w wheelchair… there are ups and downs… it can be very very frustrating and for me I get very anxious getting out and about. Until you are in a Wheelchair you do not notice all the rough bits on the pavements or the things that get in your way!!! I hope sometime soon I can except all of this and move on with a full life. …I know that others do but it does take time … I will get there…
One thing I am very happy about is that our Facebook group is growing. I feel sad that others have Radiation Induced Lumbar Plexopathy, but it is a great help for us all to connect with others in a similar situation…
Copyright © 2013-2016 byHelensamia. All rights Reserved.
Feel free to share with others. It can be distributed via social media, reblogged or added to websites. Please do not change the original content and provide appropriate credit by including the author’s name and a link to this blog. https://lifeinawheelchairblog.wordpress.com