Most weeks my friend Annie comes over and we go on a Rolling Adventure. These are to places that are wheelchair friendly, for long rolling walks, around Sydney. When I broke my leg these stopped for a while but now our adventures are back on. They are a great form of exercise plus the … More Rolling Adventures
The drama that occured three months ago, after I left hospital, felt more like one step forward and ten steps back!! Leaving hospital I then started outpatients physio twice a week. One on one for two hours each session. It was really good and I continued with my strength, stretches and wheelchair skills. Coming to … More One step forward and two steps back!!
I am sorry to say it has been a very long time since I wrote a post, 2016 has been a very up and down year with our family, from great events to very sad times. In all this I lost the urge to write even though I had created posts in my head I … More I am still here!!
Prior to becoming Paralysed I spent a lot of time in the pool as it was very good for my lymphoedema. I was never a good swimmer, just a bit of breast stroke, however freestyle, backstroke and butterfly somehow eluded me!!! I could never get the breathing right. However walking in a pool and … More Sink or Swim
Originally posted on Behind Your Smiles :
After my treatment for Hodgkin’s lymphoma at Memorial Sloan Kettering in 1995, I thought I would simply return to my old life. Gradually, though, I began to notice new, vague symptoms. I couldn’t blow-dry my hair without my arms getting tired. My head seemed too heavy for my neck,…
Since first being diagnosed with Radiation Induced Lumbar Plexopathy (RILP) I have made regular “trips” to the internet, looking for any new information. For a long time all that popped up were the same old things, and not very many of those, not patient orientated but using lots of medical jargon!! Lately however I have … More New Articles on RILP
Social media once again helped me to connect with this lady via Twitter. Her Lumbar Plexopathy was of unknown cause, so therefore the type of damage could be different to that caused by Radiation. The exciting thing is that over a period of time her nerves healed and she is once again able to walk … More How one Lady cured her Lumbar Plexopathy
I was thinking today about how Social Media has affected the way we deal with illness. Once upon a time if you were unwell it was a trip to the doctor and if needed a specialist. The only infomation that was available was that given by the doctor, nurse, social worker or maybe the odd … More How has Social Media helped you with your health?
It is not till you are in a Wheelchair that you see things in a different way while out and about!! High kerbs, narrow paths, tree roots, rubbish, steps etc.. Each one serves as a challenge. These are all the things I have to learn to navigate if I am to gain my independence. There … More The Obstacle course!!
During my three months in hospital I had a session each day with the Occupational Therapy Department. These lovely ladies had the job of getting me ready to return home using a wheelchair. This covered a very wide area, from adapting the home, personal hygiene, driving, in fact every daily activity that is needing to … More Training Wheels…