I am happy to say that my story was shared on the Rare Diseases website and that Radiation Induced Lumbar Plexopathy is now listed amongst their rare diseases. This is a step in the right direction to have acknowlegment and understanding of RILP .. we need to understand the symptoms so that diagnosis cam be … More Rare diseases
Just a little catch up with a few pictures of what I have been doing.
At last I have my membership to the Sargood at Collaroy gym. Above is the wrist band that allows me to access the weight machines with no help from anyone else… a very helpful thing when you are in a wheelchair and seek independence. I roll up to each machine, I tap the wrist band … More Accessible Gym Membership
During my stay at Sargood at Collaroy I took part in various adaptive sports. It was hard to choose from the long list of available activities, some onsite and others out and about. http://sargoodoncollaroy.com/guest-services/recreational-activities/ As this was my first visit I decided to make use of the equipment that was onsite. My first activity was to … More Adaptive sports at Sargood
Writing this post I see it as a turning point in my “Life in a Wheelchair”. Last week I spent my time staying at Sargood on Collaroy, a resort custom-built for those with spinal injuries http://sargoodoncollaroy.com What a magic place and what an amazing concept built on the site of a home left by Fredrick Sargood in … More Sargood on Collaroy
My daughter is very good at finding things that make my life a little easier. One of the difficult things is to carry hot drinks and wheel my wheelchair, its a very easy way to get burnt. This little thermos with a tea strainer inside is a great way to overcome this hurdle. I can … More Learning to adapt
Most weeks my friend Annie comes over and we go on a Rolling Adventure. These are to places that are wheelchair friendly, for long rolling walks, around Sydney. When I broke my leg these stopped for a while but now our adventures are back on. They are a great form of exercise plus the … More Rolling Adventures
Ever since I have lived in Sydney I have been walking distance from Centennial Park http://www.centennialparklands.com.au/places_to_visit/centennial_park. When the kids were small it was a great place for bike riding, parties, hide and seek, playgrounds with swings, slides and roundabouts, and night tours to see the possums. I can remember walking round the park with the children … More Fitness in the Park
The drama that occured three months ago, after I left hospital, felt more like one step forward and ten steps back!! Leaving hospital I then started outpatients physio twice a week. One on one for two hours each session. It was really good and I continued with my strength, stretches and wheelchair skills. Coming to … More One step forward and two steps back!!
I am sorry to say it has been a very long time since I wrote a post, 2016 has been a very up and down year with our family, from great events to very sad times. In all this I lost the urge to write even though I had created posts in my head I … More I am still here!!