Rare diseases

I am happy to say that my story was shared on the Rare Diseases website and that Radiation Induced Lumbar Plexopathy is now listed amongst their rare diseases. This is a step in the right direction to have acknowlegment and understanding of RILP .. we need to understand the symptoms so that diagnosis cam be … More Rare diseases

Learning to adapt

My daughter is very good at finding things that make my life a little easier. One of the difficult things is to carry hot drinks and wheel my wheelchair, its a very easy way to get burnt. This little thermos with a tea strainer inside is a great way to overcome this hurdle. I can … More Learning to adapt

Rolling Adventures

  Most weeks my friend Annie comes over and we go on a Rolling Adventure. These are to places that are wheelchair friendly, for long rolling walks, around Sydney. When I broke my leg these stopped for a while but now our adventures are back on. They are a great form of exercise plus the … More Rolling Adventures

Fitness in the Park

Ever since I have lived in Sydney I have been walking distance from Centennial Park http://www.centennialparklands.com.au/places_to_visit/centennial_park. When the kids were small it was a great place for bike riding, parties, hide and seek, playgrounds with swings, slides and roundabouts, and night tours to see the possums. I can remember walking round the park with the children … More Fitness in the Park