Rare diseases

I am happy to say that my story was shared on the Rare Diseases website and that Radiation Induced Lumbar Plexopathy is now listed amongst their rare diseases. This is a step in the right direction to have acknowlegment and understanding of RILP .. we need to understand the symptoms so that diagnosis cam be … More Rare diseases

Learning to adapt

My daughter is very good at finding things that make my life a little easier. One of the difficult things is to carry hot drinks and wheel my wheelchair, its a very easy way to get burnt. This little thermos with a tea strainer inside is a great way to overcome this hurdle. I can … More Learning to adapt

Report from MacMillan re the effects of Cancer treatments

http://www.macmillan.org.uk/documents/campaigns/cancer-then-now-report-final-online.pdf This is a link to a report from MacMillan about the side effects of cancer treatment …. Cancer then and Now… There are so many side effects of cancer treatment that affect people’s¬†quality if life however often they go unmentioned.. This report brings some acknowledgement to these side effects that many of us live … More Report from MacMillan re the effects of Cancer treatments

Hand Cycle

Yesterday I got to ride a hand cycle, great fun and I hope I will be able to do it again. Have also done some yoga and played bowls. Have been getting the chance to try out some adaptive sports … So far enjoyed the hand cycle the best..

Poster for RILP ….

This is a poster created to find others who may have Radiation Induced Lumbar Plexopathy … Have you had Pelvic Radiation? Are you having difficulty walking? Do you have Peripheral Neuropathy? Do you have Pelvic Radiation Disease Symptoms? You may have RILP …