When I first became Paralysed it was a huge adjustment, many tears and many dark days. Gradually over the last three years the dark days have become less and I have learnt to live life in a different way. Part of this adaptation was finding things that make life more exciting and more normal. One … More My New Toy!!
In March I spent two weeks doing intensive therapy with a group called Making Strides at Sargood on Collaroy. Making Strides is usually based in Queensland but a few times a year they travel down to Sargood where they do two week intensive courses… Making Strides work in a very different way to usual physiotherapy … More Intensive therapy
I am happy to say that my story was shared on the Rare Diseases website and that Radiation Induced Lumbar Plexopathy is now listed amongst their rare diseases. This is a step in the right direction to have acknowlegment and understanding of RILP .. we need to understand the symptoms so that diagnosis cam be … More Rare diseases
Just a little catch up with a few pictures of what I have been doing.
One thing I love is flowers, so a day spent at the botanical gardens is the best . These are pictures from the Winter flower exhibition in the Calyx greenhouse…just beautiful
My daughter is very good at finding things that make my life a little easier. One of the difficult things is to carry hot drinks and wheel my wheelchair, its a very easy way to get burnt. This little thermos with a tea strainer inside is a great way to overcome this hurdle. I can … More Learning to adapt
The drama that occured three months ago, after I left hospital, felt more like one step forward and ten steps back!! Leaving hospital I then started outpatients physio twice a week. One on one for two hours each session. It was really good and I continued with my strength, stretches and wheelchair skills. Coming to … More One step forward and two steps back!!
I am sorry to say it has been a very long time since I wrote a post, 2016 has been a very up and down year with our family, from great events to very sad times. In all this I lost the urge to write even though I had created posts in my head I … More I am still here!!
http://www.macmillan.org.uk/documents/campaigns/cancer-then-now-report-final-online.pdf This is a link to a report from MacMillan about the side effects of cancer treatment …. Cancer then and Now… There are so many side effects of cancer treatment that affect people’s quality if life however often they go unmentioned.. This report brings some acknowledgement to these side effects that many of us live … More Report from MacMillan re the effects of Cancer treatments
Yesterday I got to ride a hand cycle, great fun and I hope I will be able to do it again. Have also done some yoga and played bowls. Have been getting the chance to try out some adaptive sports … So far enjoyed the hand cycle the best..