I am sorry to say it has been a very long time since I wrote a post, 2016 has been a very up and down year with our family, from great events to very sad times. In all this I lost the urge to write even though I had created posts in my head I … More I am still here!!
http://www.macmillan.org.uk/documents/campaigns/cancer-then-now-report-final-online.pdf This is a link to a report from MacMillan about the side effects of cancer treatment …. Cancer then and Now… There are so many side effects of cancer treatment that affect people’s quality if life however often they go unmentioned.. This report brings some acknowledgement to these side effects that many of us live … More Report from MacMillan re the effects of Cancer treatments
Yesterday I got to ride a hand cycle, great fun and I hope I will be able to do it again. Have also done some yoga and played bowls. Have been getting the chance to try out some adaptive sports … So far enjoyed the hand cycle the best..
Radiation Induced Lumbar plexopathy …we need to grieve the loss of dreams, we cannot cure it but we can manage it given time to learn and adjust……
First I have to say it has been a while since I posted very much. It was not till a lady emailed me to check that I was ok that I realised i had been quite quiet. This wheelchair life is a bit of a roller coaster and although I set off at the beginning … More What has been Happening??
This is a poster created to find others who may have Radiation Induced Lumbar Plexopathy … Have you had Pelvic Radiation? Are you having difficulty walking? Do you have Peripheral Neuropathy? Do you have Pelvic Radiation Disease Symptoms? You may have RILP …
At last after weeks of waiting my new wheelchair arrived, the Joker, what a change from my old chair. When you use a wheelchair all the time the chair becomes your legs in everything that you do. My old chair was like having very chunky, heavy, old and unfit legs. My new chair gives me sexy, … More Welcome the Joker!!
This would be so good.. There are so many things that you have to stop and think about because access is not available… When you are out and about look around and imagine you are disabled… How would you manage?? http://themighty.com/2016/02/stevie-wonder-calls-for-disability-accessibility-in-grammys-speech/?utm_source=Facebook&utm_medium=Mighty_Page&utm_campaign=GENERAL
Dr Sylvie Delanian is a Radiation Oncologist working at the St Louis Hospital in Paris. For the past fourteen years, she has been looking at ways to treat the damaged caused by radiation therapy post cancer treatment. The level and type of damage depends on the area effected. In this blog I look at Radiation … More Dr Sylvie Delanian
I have started a closed Facebook group for those of you with Radiation Induced Lumbar Plexopathy and your carers. https://www.facebook.com/groups/RadiationInducedLumbarPlexopathy/ For those of us who have RILP it is a very lonely and isolating experience, as there is no support and little understanding. You start to feel like you are the only person in the … More Facebook Group for RILP