This is my new set of wheels to accommodate my leg being in a brace for the next few weeks. Not the easiest to move around with but it does the job!!I Also have a fitting on my shower chair to elevate the leg. We use a large plastic bag to keep my leg and the … More Update on broken knee!!
All my life I never broke a bone, however three and a half years in a wheelchair and I have had two broken bones which seems crazy as it was not as if I fell out if my chair or did anything dangerous. Nearly two years ago my femur was broken during a physio session … More Oh no not again!!!
I am once again spending two weeks at Sargood, a resort for those with spinal injuries, on the northern beaches of Sydney. I am there to take part in an intensive therapy program run by Making Strides. Making strides is based in Queensland but they send two trainers down for the two weeks at Sargood and … More Making Strides.. therapy
I am happy to say that my story was shared on the Rare Diseases website and that Radiation Induced Lumbar Plexopathy is now listed amongst their rare diseases. This is a step in the right direction to have acknowlegment and understanding of RILP .. we need to understand the symptoms so that diagnosis cam be … More Rare diseases
Just a little catch up with a few pictures of what I have been doing.
One thing I love is flowers, so a day spent at the botanical gardens is the best . These are pictures from the Winter flower exhibition in the Calyx greenhouse…just beautiful
http://www.macmillan.org.uk/documents/campaigns/cancer-then-now-report-final-online.pdf This is a link to a report from MacMillan about the side effects of cancer treatment …. Cancer then and Now… There are so many side effects of cancer treatment that affect people’s quality if life however often they go unmentioned.. This report brings some acknowledgement to these side effects that many of us live … More Report from MacMillan re the effects of Cancer treatments
Radiation Induced Lumbar plexopathy …we need to grieve the loss of dreams, we cannot cure it but we can manage it given time to learn and adjust……
First I have to say it has been a while since I posted very much. It was not till a lady emailed me to check that I was ok that I realised i had been quite quiet. This wheelchair life is a bit of a roller coaster and although I set off at the beginning … More What has been Happening??