I am once again spending two weeks at Sargood, a resort for those with spinal injuries, on the northern beaches of Sydney. I am there to take part in an intensive therapy program run by Making Strides. Making strides is based in Queensland but they send two trainers down for the two weeks at Sargood and … More Making Strides.. therapy
When I first became Paralysed it was a huge adjustment, many tears and many dark days. Gradually over the last three years the dark days have become less and I have learnt to live life in a different way. Part of this adaptation was finding things that make life more exciting and more normal. One … More My New Toy!!
In March I spent two weeks doing intensive therapy with a group called Making Strides at Sargood on Collaroy. Making Strides is usually based in Queensland but a few times a year they travel down to Sargood where they do two week intensive courses… Making Strides work in a very different way to usual physiotherapy … More Intensive therapy
I am happy to say that my story was shared on the Rare Diseases website and that Radiation Induced Lumbar Plexopathy is now listed amongst their rare diseases. This is a step in the right direction to have acknowlegment and understanding of RILP .. we need to understand the symptoms so that diagnosis cam be … More Rare diseases
I am sorry to say it has been a very long time since I wrote a post, 2016 has been a very up and down year with our family, from great events to very sad times. In all this I lost the urge to write even though I had created posts in my head I … More I am still here!!
Dr Sylvie Delanian is a Radiation Oncologist working at the St Louis Hospital in Paris. For the past fourteen years, she has been looking at ways to treat the damaged caused by radiation therapy post cancer treatment. The level and type of damage depends on the area effected. In this blog I look at Radiation … More Dr Sylvie Delanian